GBS Update Tuesday 22nd September

Thank you so much, you amazing praying friends, for still being with us even as we approach the half year mark. If we had known back when Luke was taken ill, that we would still be on this journey now it would have seemed both unbelievable and unbearable. Yet here we are, six months down the line living a life that we can even enjoy, hard though it is especially for Luke. The thought that keeps coming to me is that God has known us since before He laid the foundations of the earth, and that even when we were young children ourselves, He knew that this would one day come our way. Therefore we can trust Him as each new day unfolds and know that He gives us all we need to walk with Him in it, however long it takes.

We are settling into a new normal again at home. Luke has walked up the stairs to bed for the last three nights, as opposed to ascending the stairs on his bottom. This is huge progress and feels like a great achievement to him. He also realised yesterday that he has some feeling in his second toe on both feet. There was none before, so his toes are coming back to life! It is important to us to keep reflecting back on how far he has come, as there aren’t so many obvious changes on a daily basis. But he is getting stronger and his fatigue, whilst still there seems to be coming on later in the day, which feels more normal too.

Another change for us all is that after much thought and prayer, Gary will leave Gifford at the end of September. This will be both releasing for him and another new adventure for all of us! We have had many people tell us that they felt this illness would have implications not just for Luke but for each of the family. Gary’s intention is to have a six month break and to reflect on all that has gone on. We hope this will create more time to put into Luke’s recovery and time for one another. It has been a very hard decision to take, but we both have a peace about allowing space for God to reveal the next step in our journey.

So we would be very grateful if you would continue to pray with us for the future which He holds in the palm of His hands:

  • That Luke would go from strength to strength physically, emotionally and spiritually
  • That feeling would continue to return to his toes, which will really help with his balance
  • For his core to strengthen. This is also much needed in order to balance, he still can’t stand up without holding onto something or someone
  • Another symptom of GBS is profuse sweating, which can come on at the most inopportune moments. Please pray for this to subside as it is very uncomfortable for him
  • For God to speak clearly to each one of us about the future

We recently came across this quotation from C H Spurgeon, who described prayer as ‘the slender nerve which moves the muscle of Omnipotence.’ An analogy that resonated with us given the nature of GBS!

We are so thankful to Jesus for all that He has done and is doing on this journey. Your prayers have been and continue to be invaluable. Man does not see you as you pray, yet God hears every word and will bless you richly as continue to intercede alongside us.

‘Trust in the Lord and do good. Then you will live safely in the land and prosper. Take delight in the Lord, and he will give you your heart’s desires. Commit everything you do to the Lord. Trust him, and he will help you….. The Lord directs the steps of the godly. He delights in every detail of their lives. Though they stumble, they will never fall, for the Lord holds them by the hand.’ –  Psalm 37

With our love and thanks as always

Gary and Debbie

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