GBS Update: Wednesday 11th August 2010

The last couple of weeks have felt relatively quiet; it has felt as though I have had the opportunity to focus more on therapy and exercise. Obviously there is still a fair distance to go and I am beginning to get an idea of what to expect in the months ahead:

1 Sensation and movement should increase in my hands and feet bit by bit

2 The trache wound, which is no longer open, but has scarred over, should begin to fade

3 My walking, which I am told is getting better all the time, should improve to the extent that I’m able to walk without an aid by this time next month, when I’m discharged from hospital (albeit still walking like a thunderbird!)

4 I’m to expect to tire and fatigue easily for at least a year to come

Whilst I find it really useful to know where I’m going, it would be amazing to see deeper and faster improvements. Specifically, in order for my standing and walking to improve, my core muscles need to activate and strengthen. We are devoting a big proportion of my therapy time to this and there is every reason to expect improvements quickly.

I am also doing everything I can to manage fatigue. Big meals, extra snacks, fortified nutrition drinks and sleeping when necessary are all helping, but it is an imprecise art, and sometimes all that can be done is for me to adjust my expectations and plans to fit in with my energy levels. This is a big concern for the future and I would value your prayers.

On the other hand, today I am going swimming with the therapists and my new roommate Connor, and tomorrow we are off to a local ice cream parlour, so maybe it’s not so surprising I’m getting tired!

As the discharge date approaches, so does a sense of apprehension. The hospital has been my home for many months and there are some things I’m eager to be able to do before I get the boot. Please pray that progress will be such that I can have peace about returning home.

Over the last few days I’ve been reminded of some verses I learnt in childhood: ‘Therefore, since we are surrounded by such a great cloud of witnesses, let us throw off everything that hinders and the sin that so easily entangles, and let us run with perseverance the race marked out for us. Let us fix our eyes on Jesus, the author and perfecter of our faith, who for the joy set before Him endured the cross, scorning its shame, and sat down at the right hand of the throne of God.’ Hebrews 12:1-2

Throughout this journey I have experienced tangibly the great cloud of witnesses God has surrounded us with. I’ve been learning more about fixing my eyes on Jesus day to day.

Most of all, please pray that I would fix my eyes on Him more and more.

With my love and thanks as always

Luke x

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