GBS Update: Monday 5th July 2010

Tomorrow (Monday) will be my one hundredth day in hospital. Although much has happened in those hundred days, in a strange way I find myself in a very similar condition physically now, compared with the end of the very first day. I am therefore very happy to say that I have only one day’s worth of deterioration left to get better! I know many people would consider 100 days of hospital as cause for discouragement; and although I would never pretend to have chosen this had it been offered to me beforehand, I now see 100 days as cause for celebration. I know that I could never have endured this syndrome alone, so one hundred days is, for me, a milestone of thanks and gratefulness to a God who has never failed to sustain me throughout this illness so far. When there is someone as Big and as Great as He in your life, when something as big and potentially deadly, as Guillain Barre is, comes into your life, your world doesn’t fall apart. It simply shifts – somewhat!

From the early days I have been moved by this song, which speaks of the all-consuming greatness of the God I believe in:

O Lord my God! When I in awesome wonder, consider all the works Thy hand hath made

I see the stars, I hear the mighty thunder, Thy power throughout the universe displayed

Then sings my soul, my Saviour God to Thee, How great Thou art! How great Thou art!

Then sings my soul, my Saviour God, to Thee, How great Thou art! How great Thou art!

When through the woods and forest glades I wander and hear the birds sing sweetly in the trees

When I look down from lofty mountain grandeur and hear the brook, and feel the gentle breeze

And when I think that God His Son not sparing sent Him to die-I scarce can take it in

That on the cross my burden gladly bearing He bled and died to take away my sin

When Christ shall come with shout of acclamation and take me home-what joy shall fill my heart!

Then shall I bow in humble adoration and there proclaim, my God, how great Thou art!

My progress since the removal of the tracheostomy seems to have snowballed but nevertheless, please don’t stop praying for my full recovery! Know that in continuing to press on you are joining with men and women all over the world all asking God for the same thing! This week I aim to make faster progress on my standing, so please pray with me for the strengthening of my legs and core. I would be delighted if, by the end of the week, I might be able even to take a few steps.

My visit home on Friday was fantastic – a sign of how far I have come, but also of just how far there is to go. So please pray knowing as I do that He hears every prayer and does not tarry in answering.

With my love and thanks as always

Luke x

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