GBS Update: Thursday 1st July 2010

Another month, another update!! Just wanted to update you on Luke’s goal planning meeting of yesterday. The Physios and OTs are very pleased with Luke’s rapid progress. Their plan is to get him moving by himself as soon as possible, obviously, and the first steps towards that are to work with him to be able to get himself up and showered in the mornings, rather than having to depend on nursing staff for this to happen. Yesterday he was able to transfer to shower, and wash pretty well by himself. He was out in the wheelchair for much of the day, so by the end of the evening he was very tired. This is only to be expected they say, as everything requires so much effort. The Physios and OTs are keen to get him out of hospital for visits etc and for example to help him with one of his goals, which is to go swimming.

The doctors too are pleased with Luke’s progress, but they want to pace him, and not make him vulnerable to any setbacks by being over ambitious, because he is doing so well. His blood pressure is still quite low, but we have no idea what was normal for Luke before GBS. He also has a rapid heart rate. Both of these they think are due to GBS, and because of this they are keen to keep his goals as safe as they can. They are also aware that his immune system needs recovery time, so a possible day trip to the Brighton Conference next week, has been vetoed!

A date was set yesterday to work towards, for Luke’s discharge, which will be at the end of August. This is not set in concrete, but they are hopeful that he will be able to come home by then if not before, given his rate of improvement! If that happens, it will be five months since he was admitted to hospital. Not a bad prognosis, given we were told in the early days that he could be ventilated for a year or so!

So please come with us in prayer to Father God, who knows us better than we know ourselves, and has plans for each one of us that we do not yet know, but can trust Him for entirely

1 Please pray for Luke’s blood pressure and heart rate to normalise. These are both crucial for him to be able to move on in his recovery

2 That he will continue to confound the team by his rapid strengthening, and range of movement

3 For the transfer to car practice this morning to go well

4 That God will be growing things in him now, and indeed all of us, that will serve to glorify Him in the days and weeks and years to come. That Luke will know God’s peace in the day to day, ‘living it out’ recovery.

…….”Let the beloved of the LORD rest secure in him, for he shields him all day long, and the one the LORD loves rests between his shoulders.” Deuteronomy 33:12

This verse has long been ‘hidden in my heart’ as it were and it seems especially pertinent today. However each day pans out, God shields us through it, and we can rest in Him, and know the peace which only he can give.

With our love, and grateful thanks as always

Gary and Debbie


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