GBS Update: Friday 4th June 2010

Luke had a very good day yesterday. He had another trip outside in the stretch chair. The weather was beautiful, and he said it just felt great to be outside, and feel the fresh air on him. He also remarked on how bright it was compared with the ward. This time, he just had oxygen with him for his trache mask, carried by the physio, and he was wearing normal clothes! No monitors for BP, or pillow for his head etc, and as we all chatted outside he was leaning forward in his chair. This means that his body is strengthening as he can take the weight of his head, and lean forward and then backwards too! He really is beginning to look like ‘normal’!!! The physios have suggested that he may be able to go to the Gym next week for more exercises if he continues to improve at this rate. It would not be straightforward if he is still ventilated but possible. Luke likes this idea very much!

We really are grateful for your prayers, God has been so faithful to us all and we are seeing so much strength returning to Luke. So perhaps you could pray that Luke will improve steadily and that he would be able to go to the Gym next week. Seeing little improvements day by day really motivates him. He’s not making the progress he would like with breathing, but when he can feel he is improving in any way he’s happy.

‘As parents feel for their children, God feels for those who fear him. He knows us inside and out, keeps in mind that we’re made of mud. Men and women don’t live very long; like wildflowers they spring up and blossom, but a storm snuffs them out just as quickly, leaving nothing to show they were here. God’s love, though, is ever and always, eternally present to all who fear him, making everything right for them and their children as they follow his Covenant ways and remember to do whatever he said.’ Psalm 103, The Message

We are all coming to the place of accepting God’s timing. We only see part of the picture, but as God works His purposes out for Luke and for us, He sees the bigger picture and really does work all things together for good in our lives. This is no longer just a belief, but we feel its practical outworking in our lives. He knows our frustrations at living this ‘parallel’ life; but we really do have so much to be thankful for, and as we trust Him day by day He gives us all we need for each day.

We will send the next e mail on Monday, to give you an update on the weekend. You are amazingly faithful and we thank you!

With our love,

Gary and Debbie

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