GBS Update: Saturday 15th May 2010

Luke was very tired when we visited in the morning yesterday. As the day went on his levels of oxygen in his blood were dropping, and by late afternoon the doctors were concerned that his right lung was not inflating properly. An x-ray was taken to ascertain whether he had a collapsed lung or not. We were able to ask some of you to pray. They think he may have had pockets of sputum in the lung, which were causing it to not inflate properly, but there was no sign that the lung had collapsed, praise God. They put him back on the ventilator and upped the level of oxygen from 28% to 80 %. They also increased significantly the rate at which the ventilator was pumping oxygen. This started to raise his oxygen levels again.

We spoke with the Consultant, and she told us that she thinks they were over confident in trying to wean Luke off the ventilator on Thursday. He had been on the trache mask and speaking valve for around 14 hours. She told us that Luke had been doing so unusually well for a GBS patient that they had overestimated his ability to breathe.

This feels like a step backwards, but she tells us it is normal for GBS, and that what is unusual is that Luke has had not bad days for many weeks. Luke is now on the ventilator with the cuff up, which means he cannot speak or eat/drink. If his breathing does not improve they will have to reinsert the feeding tube and put him back on IV fluids.

This is hugely frustrating for all of us, most of all Luke, and he feels quite cross, that they ‘pushed’ him not only to the limit of his ability to breathe, but over it, and now he’s back on ventilation. The Consultant says that this is a ‘blip.’

Please pray two things

1 That Luke’s body, in particular his lungs, will recover well and that he will be able to not just be back to where he was a couple of days ago in terms of breathing, but better, and that this will not delay his progress in any way. Please continue to pray that he will have good day after good day.

2 That God will comfort him, hold him, encourage him and love him during this unexpected turn of events. It may be a surprise to us, but God knew about it before we did and is just as able to heal Luke now as he was days ago.

When the nurse was booking the x ray she had to look back to see when he last had an x ray. The last one was 23 April, which amazed her and she said ‘It’s because he’s only had good days since then.’ This is because of our wonderful God, and yesterday feels like a real attack on Luke’s upward progression of healing. We are sad for our boy having to continue to endure, but we trust the One who made him to bring him to a place of wholeness and restoration.

‘The Lord is my rock, my fortress and my deliverer; my God is my rock, in whom I take refuge……He reached down from on high and took hold of me; he drew me out of deep waters. He rescued me from my powerful enemy, from my foes, who were too strong for me. They confronted me in the day of my disaster, but the Lord was my support. He brought me into a spacious place; He rescued me because He delighted in me.’ Psalm 18

We so appreciate you, thank you for caring and praying with us to our Mighty God

With our love,

Gary and Debbie


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