GBS Update: Thursday 13th May 2010

We were reflecting this morning over a cup of tea, on how far Luke has come. Four weeks ago we were told by the Consultant in Sheffield that Luke could be on the ventilator for up to a year, possibly even 18 months, given the severity of his condition. Yesterday we were told that they think it will be days rather than weeks until he comes off the ventilator and is able to move out of ICU and onto a ward. Luke has been ventilated for just less than 6 weeks, so far. We were told 3 weeks ago, that he was in danger of being in the 10% who die from GBS, and that he would not have an upward progression in healing, but that it would be a case of good day, followed by bad day. It honestly feels like he has had good day after good day, and in terms of his recovery from GBS, and that there has been continuous movement forward. So there have been amazing answers to prayer, which are a major cause for celebration.

His bowel however is not! He has been in considerable pain, for the last 48 hours, and has a blockage in his back passage. We spoke to the hospital this morning and they say he slept reasonably well, but had still not passed anything. This is getting urgent now for Luke because of the huge discomfort it is causing him. It is also very frustrating as he is making such good progress in other areas and this feels to him like a huge distraction.

A real positive step forward yesterday was the fact that he spent 4 hours off the ventilator during the day, with the oxygen mask over his trache and the speaking valve. Only a few days ago he was struggling after 20 minutes or so, so this is massive improvement and contributes to them thinking it will only be days before he is off the ventilator.

Our heartfelt thanks once again for staying with us in this battle, please pray today

1 Urgently, for Luke’s bowel to function! He has been so courageous over the last 7 weeks, but was close to tears yesterday. The pain has moved from his tummy to his back passage, so please pray for a miraculous movement and healing!

2 Praise God for the rapid improvement in his breathing and that it will continue so that he may breathe without the ventilator.

3 Luke has asked that we pray for movement in his hands and arms. Whilst he wants his healing to progress, he is concerned about being on a normal ward, without one to one care, and still being unable to call for a nurse, turn on the TV/CD player etc. On ICU, he has a nurse at the end of his bed 24/7 so if he needs anything, they are able to assist. I think he’s concerned about being left, when he can’t use a buzzer to call the nurse etc.

4 For the peace of God on Luke, for courage in the pain, and for continued faith to see God work out His purposes and healing in Luke’s life.

‘O LORD, my heart is not proud, nor my eyes haughty; nor do I involve myself in great matters, or in things too difficult for me. Surely I have composed and quieted my soul; like a weaned child rests against his mother, my soul is like a weaned child within me. O Israel, hope in the LORD, from this time forth and forever.’ Psalm 131

We continue to look to Jesus and rest in Him. Only in Him can we find peace in our spirits and rest for our souls. We trust Him.

With love,

Gary and Debbie

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