GBS Update: Wednesday 5th May 2010

When I arrived yesterday Luke told me, ‘I feel really good today!’ His pain was under control, and he is now off IV fluids altogether as he can drink through a straw. He enjoyed a chocolate mousse and a petit filous, and it is obvious he relishes every mouthful! The Consultant came along for his ward round and told his team, ’This is my star performer!’ He said the next aim would be to get Luke off the liquid feed through his nose and onto normal food, but he said this will take a good while. His face muscles and pucker will need to be significantly stronger, but he’s on the way.

He had half an hour off the ventilator with the oxygen mask over his trache. He coped well, and then slept soundly for an hour and a half, so he obviously finds it hard work. He had the cuff down on his trache from 8am to 10pm, which means he was initiating breathing for 14 hours, with help from the ventilator. Their aim is to stretch him, but not so much that he overdoes it and goes backwards. Once he is off the ventilator, the aim is to transfer him to a Neuro ward and from there to rehab. This is expected to be a long process.

Please pray

1 Thanking God for so much progress over the last two weeks. Even though Luke is still largely paralysed, he is so much stronger and can see new movements every day, eg his wrists started to move yesterday.

2 For wisdom for the doctors/physios in weaning him off the ventilator. That progress will be at the right pace. We really desire that it is an accelerated process, but not so fast that he relapses.

3 For his pucker/facial muscles to continue to strengthen.

4 For his cough, he can now clear his throat which is amazing, but it’s not quite a full cough yet, and takes lots of energy.

5 The nurses tell us that he is making rapid progress in their experience of GBS, and that he is the most patient GBS patient they have nursed! We know this is the grace of God on Luke, who has always hated pain!!

6 For Luke to get to the point of not needing the liquid nutrition through his nose because he can eat well.

7 For God to continue to speak to Luke in this period of stillness. He has had many prophetic words over him with regard to this, please pray that Luke will continue to ‘Be still and know that I am God’ and to become increasingly aware of God’s purposes for him in this.

8 For total healing!

‘Against all hope, Abraham in hope believed and so became the father of many nations, just as it had been said to him, “So shall your offspring be.” Without weakening in his faith, he faced the fact that his body was as good as dead—since he was about a hundred years old—and that Sarah’s womb was also dead. Yet he did not waver through unbelief regarding the promise of God, but was strengthened in his faith and gave glory to God, being fully persuaded that God had power to do what he had promised.’ Romans 4 18-20

And we know that God did do for Abraham what He had promised! We have had prophetic words (from so many different people, who don’t know each other) that God is using this to bring about His purposes for Luke spiritually, followed by physical healing and we are fully persuaded that He has the power to do what he has promised. So we look to Jesus, and trust Him to complete his work.

Greatest love and thanks,

Gary and Debbie


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