GBS Update: Friday 30th April 2010

Thursday was a good day for Luke. When I arrived he was bright and breezy, just finishing off with the Physios and OTs. They told him his arms were a little stronger. In the afternoon the Physios came and fitted a valve on his trachea and took him off the ventilator. He had an oxygen mask over the trachea to help him, but he was able to breathe by himself for 10 minutes or so. He found it very hard work, but was able to do it and chat at the same time, which he wasn’t able to do when they tried it on Monday. He also had a bunch of students brought to him and they had to find out what was wrong with him, by asking him questions. He could answer them but not actually tell them it was GBS, and he enjoyed it I think, as it broke up his day.

By the end of the day, however, he had shooting pains in his legs and feet, which we know is ‘good’ pain’ but doesn’t feel like it. He was also very tired and very low emotionally as we came to leave. It is five weeks tomorrow since he was admitted to hospital, and five weeks on Sunday since he was transferred to ICU. He said that he knows he is getting better, but just felt really sad at the end of the day. This journey is proving to be long and arduous for him, and our prayer requests for today are centered around that fact.

Please pray

1 For an outpouring of God’s healing power on Luke, in an accelerated way. That he would start to see marked improvement day after day.

– that he would be able to cough; he gets sputum stuck above his trachea and finds it hard to dislodge it, and the ability to cough would make all the difference

– for the pain in his legs and feet, often sharp and shooting at times

-for the strengthening of his diaphragm. He is using all his chest muscles (which are strong) to breathe, but it is hard work because his diaphragm is still paralysed

-continue to pray for his pucker in his lips, he so wants this to return

-continue to pray for movement in his fingers, hands and arms

2 That God will encourage Luke as he spends day after day on ICU. He has been so upbeat, but the reality is it’s a hard path to walk, and there will be times when it all feels too much. Please pray for a real peace on him, and a sense of God’s purposes in it all. That he would continually be aware of God’s passionate heart towards him in the midst of adversity

Thank you for continuing to e mail, send cards text etc. It makes all the difference to Luke, as I print off all mails and texts etc and along with the cards read them to him each day. He says they are a real highlight for him and encourage him so much.

A friend sent these verses from Isaiah 40 for Luke today, and it would be really good if you could pray it for him today,

‘Do you not know? Have you not heard? The LORD is the everlasting God, the Creator of the ends of the earth. He will not grow tired or weary, and his understanding no one can fathom. He gives strength to the weary and increases the power of the weak. Even youths grow tired and weary, and young men stumble and fall; but those who hope in the LORD will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint.’

We have a Mighty God, who holds us in the valleys and sings with us on the mountain tops, and it is in Him we trust

Greatest thanks and love

Gary and Debbie

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