GBS Update: Tuesday 13th April 2010

Luke’s day yesterday was very mixed. In the afternoon he seemed quite bright and some friends from church in Sheffield visited which he enjoyed. As the day progressed he became quite confused and fearful about where he was and what was happening. By the time we left in the evening, he thought he could see things that weren’t there and was very distressed. We spoke to the anaesthetist who seems to think this could be due to several factors. It could be related in part to the drugs he is on, and he was going to get the pain relief team to re-assess his medication. It could also be due to sleep deprivation, as his sleep over the last 2 ½ weeks has been very disrupted and scant. Also, he told us that people who are bright and have lively minds find it difficult over a prolonged period with no stimulation and limited expression, and their minds work overtime. Last night was horrible, and all we wanted to do was re-assure him and take it all away. It doesn’t seem to matter whether your child is 2½ or 25 the heart you have to love and protect them is just as strong!

Please pray

1 That Luke would be free from fear and that God would give him peace of heart and clarity of mind, as he rests.
2 That he would be able to sleep, in an environment that is full of noise and activity, to rest his body, mind and spirit.
3 He keeps thinking he is seeing his hands moving when they are not. Please pray that they will start to move and that he will see progress today.
4 Continued wisdom for the amazing medical team as they balance the pain involved in his improvement with the quantity of medication, and it’s possible side effects.
5 For God’s timing on the transfer to Southampton. 6 Continue to pray for Ben and Joel who are well fed, (thank you our amazing friends!) but finding life interesting with dealing with normal domestic issues like blocked toilets!  

‘We can rejoice, too, when we run into problems and trials, for we know that they help us develop endurance. And endurance develops strength of character, and character strengthens our confident hope of salvation. And this hope will not lead to disappointment. For we know how dearly God loves us, because he has given us the Holy Spirit to fill our hearts with his love.’ Romans 5:3-5

We fix our eyes on our Mighty God, Jesus Christ, who has promised to never leave us or abandon us, and know that He holds onto us all, and especially at this time our lovely boy!

Many, many thanks, and much love

Gary and Debbie


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